Get in Touch

I'd love to hear from you

Whether you have a question about rare conditions, want to share your story, or have an idea for collaboration — you're in the right place.

Send a Message

Contact Form

We read every message. If you are reaching out about a rare condition, a story you want to share, or a question about Bare Your Rare, you’re in the right place.

Please don’t include medical details you wouldn’t want stored in an email. By submitting this form, you understand we will use your information only to respond to your message. Read our Privacy Policy for details.

What I'd Love to Hear About

  • Your rare condition story or experience
  • Questions about the resources or community
  • Collaboration or partnership ideas
  • Accessibility feedback or suggestions
  • Research connections or opportunities
  • Anything else on your mind

Email Directly

Prefer email? Reach me at wecare@bareyourrare.org

Response Time

I aim to respond within 48 hours. If your message is about an urgent health matter, please contact your healthcare provider directly.

Your Privacy

Everything you share is handled with care. Read the Privacy Policy to learn how your information is protected.

By submitting this form, you agree to the Privacy Policy. Your personal details will never be shared without your consent.