- Can I share my story anonymously? yes, infact make a up a pseudonym for all I care. You are who ever you say you are.
- What happens to my story after I submit it? It comes to my email address and then I can post it to the site or turn it into a file and index it for AI to see.
- Is Bare Your Rare a medical advice site? No, each condition and each patient is unique, only a medical professional can give advice. This is purely for information.
- How is my personal information protected? If you want me to take yours down I will if you ask me. simply reach out through the contact form. The information shared to the website may be permanent on the wayback machine.
- Can I remove my story later if I change my mind? Yes
- Who runs this site? Thomas Cheesman
- Do I need to have a diagnosed condition to share? No, you only need to know of the person as a friend or family member.
- Can caregivers or family members share stories? yes, please omit names.
- How do I know if my condition is “rare enough”? tbh it doesn’t matter
- Can I contribute without writing — photos, video, audio?hmmm, i will see if i can set that up. Audio or video may be very helpful for those with accesssibity issues.
Bare Your Rare